Category Archives: Courage

RAISE YOUR VOICE

Raising my voice on behalf of our disabled son came naturally – I was his mother. His dad and I saw his disability rights as basic human rights. So we spoke his name along with our names on behalf of … Continue reading

Posted in Courage, Disabilities, Inspiration, Life, Writing | Tagged , , , , , , , , , | 6 Comments

Mirror of your Soul

Poems have been a part of my life ever since I can remember. Growing up, my father wrote poems for my mother on special occasions that usually involved poetic clues to what or where her present was. My oldest sister, … Continue reading

Posted in Courage, Disabilities, Inspiration, Loss of a Child, Love, Poetry | Tagged , , , , , , , , , , , , | Leave a comment

tomorrow I STAND

I don’t consider myself political. Not at all. I’m not the person that debates politics or tries to change another human being’s political beliefs. But in looking back at my history of advocacy on behalf of children with disabilities, at my core … Continue reading

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living past the dying

My head has been swirling for the past couple weeks for many reasons.  Two of which are the sudden death of Robin Williams and the ongoing debate over the ALS Ice Bucket Challenge.  In regards to the ALS debate: I … Continue reading

Posted in Courage, Death, Writing | Tagged , , , , , , , , , , , , , , , , , , , | 37 Comments

The Funeral Suit

another death… a celebration of life   gliding past in videos and photographs of happier times when life was full   a black wool suit for a winters passing a silk linen blend for warm weathers mourning   hanging in … Continue reading

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The Music of Acceptance

This post is dedicated to the memory of our son, Preston, who loved music.  And life. Several months ago, I watched the Glee episode honoring actor, Corey Monteith through his character, Finn Hudson.  Yes, I’m a gleek. I happen to … Continue reading

Posted in Christmas, Courage, Disabilities, Loss of a Child | Tagged , , , , , , , , , , , , , , | 6 Comments

Aerating your Lawn: A Metaphor for Life

Last weeks blogpost was heavy…very heavy.  It felt good to release that part of me.  An incremental speck of who I am.  I’ve been called an old soul, philosophical (much to my family’s chagrin at times), and I recently learned … Continue reading

Posted in Courage, Philosophy, The empty nest | Tagged , , , , , , , , , , | 19 Comments

RAISE THE ROOF!

“We must let go of the life we planned, so as to accept the one that is waiting for us.” Parents are delivered into their empty nest in a multitude of ways, across different spans of place and time.  Some … Continue reading

Posted in Courage, Death, Loss of a Child | Tagged , , , , , , , , , , , , , , | 27 Comments

WITHOUT HESITATION

What is a NESTpiration you say?  It is what makes you jump out of your seat and yell woohoo!  It’s what puts an automatic “million dollar smile” on your face.  What melts your heart and makes you say awww out … Continue reading

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